They asked respondents who they thought owned the samples involved in these projects, with 44% stating the institution, 26% the donor, and 23% the researcher. 58% preferred deidentification to anonymization, and 53% thought donors had a continuing right to make decisions regarding the use of their samples. 72% of Caulfield et al.’s respondents preferred that participants have the right to withdraw at any time.
Source: wiktionary